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논문분류	춘계학술대회 초록집
제목	Assessment of Quality of Life in Children with Chronic Kidney Disease Based on First 3 Years Data of The Pediatric CKD Cohort
저자	Min Hyun Cho1, Il Soo Ha2, Hee Gyung Kang2, Hae Il Cheong2,Young Seo Park3, Joo Hoon Lee3, Hee Yeon Cho4, Jae Il Shin5
출판정보	2014; 2014(1):
키워드	만성 콩팥병, 삶의 질, 소아
초록	Objectives: Quality of life (QOL) is an essential subject in children with chronic kidney disease (CKD) and their family. In Korea, a 10-year longitudinal study on the patient and renal survival by specific causes of CKD (KNOW-CKD study) has been pursued from 2011 and pediatric cohort is one of subgroups in the groups of KNOW-CKD study. Methods: We performed a cross-sectional investigation of QOL in children with CKD (Pediatric cohort) using the PedsQL 4.0 Generic Core Scale Module. During 3 years, total 300 pediatric patients with CKD aged 2-18 year old were enrolled from five Korean university hospitals. Results: The male to female ratio was 199:101 and mean age was 10.1 years old. According to CKD staging, patients were distributed as follows; stage I 47, stage II 53, stage III 101, stage IV 54, stage V 45. Patients with higher CKD stage had significantly lower QOL score in all domains of the parent-proxy reports, but not child-self reports. According to gender, boys had a tendency to present better QOL than girls in the child-self reports, especially in emotional functioning, psychosocial health summary score and total score, but, in the parent-proxy reports, there was no significant difference between these two groups. Age discrepancy was not a significant factor to decide QOL in children with CKD. In addition, there was significant difference between parent-proxy reports and child-self reports and QOL scores in the child-self reports was significantly higher than in the parent-proxy reports, especially in the domains of emotional, school functioning and psychosocial health summary score. Conclusions: Residual renal function and gender in children with CKD can be important factors to decide QOL, but there was a significant difference of these results between parent-proxy and child-self reports. Therefore, we need systemic, individualized supporting tools to improve QOL of children with CKD and their families
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